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Day 351

Updated: Jun 27, 2019



Thank you to everyone who asked about the pathology report form St. Jude's. I appreciate that you care. I care about you too. Here are the key findings:

  • Integrated diagnosis: Glioblastoma, IDH-wildtype - Fast growing, rarely inherited, preceded by seizure. Typical prognosis is 11-15 months with radiation and chemotherapy. Source: https://www.abta.org/tumor_types/glioblastoma-gbm/

  • WHO grade: Grade IV (Highest Grade) - Undifferentiated - Cells or tissues that do not have specialized ("mature") structures or functions. Undifferentiated cancer cells often grow and spread quickly. Source: https://www.cancer.gov/about-cancer/diagnosis-staging/prognosis/tumor-grade-fact-sheet

I asked the physicians who conducted the tests if Constance inherited the genes that caused her brain tumor. They said no. I called Constance's paternal grandmother to tell her the findings. I speculated to her that this information might lessened the likelihood that her son would die of a brain tumor. She cried. She said she wanted to know why, if it was not genes, Constance got a brain tumor. She said that she wants Constance back. I do too.

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